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General Information for All DisabilitiesEach of the sites below provides information relevant to many different types of disabilities. The list is organized in the following sections: Music Organizations, Federal Agencies, and Nonprofit Organizations. For the most detailed information on many different disabilities, consult the sites and links for the National Dissemination Center for Children with Disabilities (NICHCY) and the Council for Exceptional Children (CEC). For information on children and adults with severe disabilities, consult TASH. And for detailed information on the Individuals with Disabilities Education Improvement Act of 2004 (IDEA 2004), consult the sites for the Office of Special Education and Rehabilitative Services (OSERS) and NICHCY. __________________________________________ MUSIC ORGANIZATIONS American Music Therapy Association, Inc. The mission of the American Music Therapy Association is to advance public
awareness of the benefits of music therapy and increase access to quality
music therapy services in a rapidly changing world. Music Therapy is an
established healthcare profession that uses music to address physical, emotional,
cognitive, and social needs of individuals of all ages. Music therapy improves
the quality of life for persons who are well and meets the needs of children
and adults with disabilities or illnesses. Music therapy interventions can
be designed to promote wellness; manage stress; alleviate pain; express
feelings; enhance memory; improve communication; promote physical rehabilitation. MENC: The National Association for Music Education Preamble: Music allows us to celebrate and preserve our cultural heritages,
and also to explore the realms of expression, imagination, and creation
resulting in new knowledge. Therefore, every individual should be guaranteed
the opportunity to learn music and to share in musical experiences. MENC's
Mission: The mission of MENC: The National Association for Music Education
is to advance music education by encouraging the study and making of music
by all. FEDERAL AGENCIES Centers for Disease Control and Prevention The National Institutes of Health (NIH), a part of the U.S. Department
of Health and Human Services, is the primary Federal agency for conducting
and supporting medical research. The Secretary of Health and Human Services created the Office on Disability (OD) in October 2002. The Office on Disability oversees the implementation and coordination of disability programs, policies and special initiatives for 54 million persons with disabilities. Disabilities information is available on topics such as Section 508 Accessibility, Section 504 of the Rehabilitation Act, and the Americans with Disabilities Act and others. Office of Special Education and Rehabilitative Services (OSERS) OSERS is comprised of the Office of the Assistant Secretary (OAS) and three
program components: the Office of Special Education Programs (OSEP), the
National Institute on Disability and Rehabilitation Research (NIDRR), and
the Rehabilitation Services Administration (RSA). OSERS provides a wide
array of supports to parents and individuals, school districts and states
in three main areas: special education, vocational rehabilitation and research. NONPROFIT ORGANIZATIONS Alliance for Technology Access (ATA) The Alliance for Technology Access is the national network of community-based Resource Centers, Developers, Vendors, and Associates dedicated to providing information and support services to children and adults with disabilities, and increasing their use of standard, assistive, and information technologies. Council for Exceptional Children (CEC)
Overview: The Council for Exceptional Children (CEC) is the largest international
professional organization dedicated to improving educational outcomes for
individuals with exceptionalities, students with disabilities, and/or the
gifted. CEC advocates for appropriate governmental policies, sets professional
standards, provides continual professional development, advocates for newly
and historically underserved individuals with exceptionalities, and helps
professionals obtain conditions and resources necessary for effective professional
practice. Services Provided: Professional development opportunities and
resources; 17 divisions for specialized information; Journals and newsletters
with information on new research findings, classroom practices that work,
federal legislation, and policies; Conventions and conferences; Special
education publications. Easter Seals has been helping individuals with disabilities and special
needs, and their families, live better lives for more than 80 years. From
child development centers to physical rehabilitation and job training for
people with disabilities, Easter Seals offers a variety of services to help
people with disabilities address life's challenges and achieve personal
goals. Easter Seals assists more than one million children and adults with
disabilities and their families annually through a nationwide network of
more than 450 service sites. March of Dimes Our mission is to improve the health of babies by preventing birth defects,
premature birth, and infant mortality. We carry out this mission through
research, community services, education and advocacy to save babies' lives.
March of Dimes researchers, volunteers, educators, outreach workers and
advocates work together to give all babies a fighting chance against the
threats to their health: prematurity, birth defects, low birthweight. NICHCY serves the nation as a central source of information on: The IDEA was originally enacted by Congress in 1975 to make sure that children
with disabilities had the opportunity to receive a free appropriate
public education, just like other children. The law has been revised
many times over the years. The most recent amendments were passed by Congress
in December 2004, with final regulations published in August 2006.
So, in some senses, the law is very new, even as it has a long, detailed,
and powerful history. IDEA guides how states and school districts provide
special education and related services to more than six million eligible
children with disabilities. NICHCY provides the following sites on IDEA: The statute passed by Congress in December 2004. http://www.nichcy.org/idealaw.htm Final regulations for IDEA 2004 were published in August 2006. http://www.nichcy.org/idearegs.htm Resources on IDEA 2004. http://www.nichcy.org/resources/IDEA2004resources.asp OSEP-Reviewed Materials on IDEA 2004. These publications and products have reviewed by the Office of Special Education Programs to assure their consistency with the IDEA 2004 statute. http://www.nichcy.org/idealist.htm OSERS and OSEP (Office of Special Education Programs) have also made a series of short summaries available on changes from the IDEA 97 to IDEA 2004. All of these can be found in NICHCY's "OSEP-Reviewed Materials on IDEA 2004," posted at: http://www.nichcy.org/idealist.htm National Organization for Rare Disorders Mission Statement:
The National Organization for Rare Disorders (NORD),
a 501(c)3 organization, is a unique federation of voluntary health
organizations dedicated to helping people with rare "orphan" diseases
and assisting the organizations that serve them. NORD is committed to the
identification, treatment, and cure of rare disorders through programs of
education, advocacy, research, and service. NORD Services and Programs:
NORD provides information about diseases, referrals to patient organizations,
research grants and fellowships, advocacy for the rare-disease community,
and Medication Assistance Programs that help needy patients obtain certain
drugs they could not otherwise afford. The National Disability Sports Alliance (NDSA) is the National Coordinating Body for competitive sports for individuals with cerebral palsy, traumatic brain injuries and survivors of stroke. NDSA was originally formed as the United States Cerebral Palsy Athletic Association (USCPAA) in 1987. NDSA also provides programming for other physically disabling conditions such as muscular dystrophy and multiple sclerosis. Parent Advocacy Coalition for Educational Rights (PACER) The mission of PACER Center is to expand opportunities and enhance the
quality of life of children and young adults with disabilities and their
families, based on the concept of parents helping parents. TASH TASH is an international membership association leading the way to inclusive communities through research, education, and advocacy. TASH members are people with disabilities, family members, fellow citizens, advocates, and professionals working together to create change and build capacity so that all people, no matter their perceived level of disability, are included in all aspects of society. We have twenty-five chapters and thousands of members from thirty-four different countries and territories. Since our inception over thirty years ago, TASH has gained international acclaim for our uncompromising stand against separatism, stigmatization, abuse and neglect. We actively promote the full inclusion and participation of persons with disabilities in all aspects of life. TASH believes that no one with a disability should be forced to live, work, or learn in a segregated setting; that all individuals deserve the right to direct their own lives. TASH 's mission is to eliminate physical and social obstacles that prevent equity, diversity, and quality of life. __________________________________
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